WHY I CANNOT SAY IF HORMONE TREATMENT IS WORKING FOR ME.

It’s been a while, sometimes you just need to have time away from being online and on social media. This is more significant when you are having a difficult time with the world. I am going into my third, and final, month of my hormone treatment before my review with my consultant and I can say confidently that I cannot even say if the hormone treatment has been working for me. 

Winter is the worst season for me because the constant cold weather makes my Fibromyalgia a lot worse, meaning that I am constantly in a flare and the pain is significant from head-to-toe. The Fibro pain then makes it difficult for me to focus on whether or not the abdominal pain has improved or remained the same. To me it seems like it hasn’t improved but, obviously, I cannot be sure when the pain is bad all over my body. This pain has meant that getting enough rest is not actually happening which then adds to the pain and it becomes a never-ending cycle of pain, restlessness and more pain. 

On top of the constant flare that feels like it’s never-ending and exhausting, I haven’t had a good headspace which has meant I have been unable to focus on much. Adding more and more to the uncertainty of whether or not the hormone treatment is working for me. I was hoping that, going into the third month, I would have more of an idea whether it was helping my abdominal pain once my body had adjusted to the medication. I always say that medication works differently for everyone: one medication may be a helpful treatment for some but not for other. The same goes for non-medicinal treatment options. Yet, going into the third month, I just cannot even say if it is helping me in the slightest. A continuous flare of horrific pain and bad headspace just masks everything else. This may make for an interesting review with my consultant; trying to make sense of the fact that I cannot say, after three months, if the hormone medication is the ongoing way forward for me. 

Obviously, hormone treatment isn’t a cure (there is no cure unfortunately) but it would be a beneficial treatment to reduce the growth of the endometrium cells which means going on for longer before having to have excision surgery. Then repeat the whole process again once it starts growing where it shouldn’t again. Not having hormone treatment that is able to help reduce the growth just means being stuck with excision surgeries only and no one can say how many you’ll need throughout the rest of your life as everyone is different. 

One more month left and then it’s my review appointment to discuss the treatment and excision surgery. Wish me luck for just trying to explain how this has been for me.